Instrumentos para avaliação da qualidade da assistência e experiência do paciente oncológico em cuidados paliativos

Abstract

Objective: To investigate the availability of instruments for assessing the experience of cancer patients in a palliative care context. Methods: This is an integrative literature review conducted in six stages, involving searches in the LILACS, SciELO, MEDLINE, BDENF, and PubMed databases using the descriptors “Patient Satisfaction,” “Palliative Care,” “Neoplasms,” “Quality of Health Care,” and “Patient Health Questionnaire,” combined with the Boolean operator “AND.” Original articles available in full text in Portuguese, English, and Spanish were included, while reviews, theses, dissertations, and duplicates were excluded. Results: A total of 2,063 studies were identified, 12 of which were included after applying eligibility criteria. A predominance of publications in English was observed, with a high concentration of studies from Asia; these primarily addressed patient perception and satisfaction, quality of life, symptom control, and quality of care, with a prevalence of cross-sectional studies. Conclusion: The analyzed studies demonstrate the use of instruments to assess the experience of cancer patients in palliative care—with an emphasis on satisfaction and quality of life—and show a predominance of scales focused on clinical aspects. There is a need to develop instruments that encompass the subjective dimensions of care, reinforcing the importance of scientific research and a multiprofessional approach.